I started this blog nearly a decade ago because I felt that more awareness was needed about this condition. I am so grateful to see that, as more people have come forward about their Misophonia experiences, awareness has grown to the point where this condition is being researched in a meaningful way and us Misophones have strong advocates in our corner.
I attended the first-ever conference for people with Misophonia about a week ago in Portland, Ore., and I’m still digesting a lot of what I learned. Here’s a brief list of some of the takeaways from the conference: Misophonia.com has a letter to physicians that you can print out and bring with you to theContinue reading “Useful information on Misophonia, from the Portland conference”
I’m heading off in a new direction when it comes to seeking help for my misophonia, and I have no idea whether it will work. I was recently contacted by a behavioral scientist who offered to try an experimental treatment on me, free of charge. Since I’ll try almost anything to get rid of myContinue reading “Starting an experimental misophonia treatment that works with the body’s reflexes”
Audiologists and other specialists who have been working with misophonia patients will be on hand to talk about the condition Oct. 25-26 at the First Congregational United Church in downtown Portland, Ore. As far as I know, it’s the first-ever misophonia conference, and it sounds like a variety of treatment ideas will be discussed. ToContinue reading “Misophonia experts on hand at Portland conference Oct. 25-26”
I finally got set up with a therapist to talk about some coping strategies for misophonia. This therapist does not specialize in misophonia; in fact she hadn’t even heard about it until I stepped into her office on the morning of my appointment. She gave me the same puzzled look my primary care doctor hadContinue reading “Therapy for misophonia will be a work in progress”
I finally went to my misophonia appointment, where I received some good news, and some bad news. Let’s have the good news first. As I mentioned in a previous post, I wasn’t sure what to expect, and this was my first time seeking help for misophonia. Although misophonia is currently incurable, I learned about cognitive behavioral therapy,Continue reading “Cognitive behavioral therapy, white noise generators used as defenses against misophonia”
Today I made a big step toward getting help for my misophonia. I made an appointment for a consultation with a woman in Portland, Oregon, who specializes in audiology disorders, including tinnitus, hyperacusis and misoponia. I left a message with the doctor on Friday and she called me while at work on Monday. I leftContinue reading “Taking the first steps to getting help”
Great news! One of the largest and most reputable newspapers in the world, the New York Times, wrote a story yesterday about misophonia. I’m posting the photo used with the column because I like the way the art expresses this condition. I recently wrote about why awareness of misophonia is so important to people whoContinue reading “The New York Times writes article about misophonia”